Cerebral Palsy Awareness:
Top Resources on CP
The Daily Doze
March is Cerebral Palsy Awareness Month, so it's an ideal time to shed light on this condition and the advocacy efforts.
Cerebral Palsy (CP) is the most common lifelong disability, affecting movement and muscle tone or posture. According to the US Center for Disease Control, it affects one in 345 children.
Each case of Cerebral Palsy is unique in how it affects the body. Unfortunately, there is no cure, although there are therapies to address the difficulties associated with it. Treatment programs are available to help with body movement, speech, hearing, learning, and social & emotional development.
We’ve gathered some great resources to help understand and manage CP. We share how to find the latest research articles, books, support organizations, blogs, and more.
Educational Resources
Learn more information about Cerebral Palsy through these helpful websites:
- CPReasource.org - a place to learn from top clinicians and providers in the field, as well as other families and individuals dealing with similar diagnoses and symptoms.
- Yourcpf.org - a foundation that focuses on research, clinical application, and knowledge transfer about CP.
- Cerebralpalsy.org.au - an alliance of advocates backed by a research institute dedicated to supporting world-class research treatments to prevent or reduce the impact of CP.
Communities & Support Groups
Reaching out to specific groups within your home state is great for connecting with other families, therapy centers, and doctor clinics locally. Communities on social media can help you learn about different treatments, surgeries, and medical equipment swaps. Stay posted in these groups to learn about inclusive programs for children and people with CP, such as swimming, dance, or therapeutic horseback riding.
Here are a few specific online groups that can help you find the support you need:
- CP Daily Living - a blog and resource website for parents, caregivers, and others looking for information about CP.
- CP Families Together of Michigan - a parent-run group devoted to Support, Education, and Advocacy to Michiganders with Cerebral Palsy & their Families.
- CP Warriors, Mommies, Daddies, Grandparents, and Caregivers - a safe space to vent, brag, and hear amazing stories about children living with CP.
Cerebral Palsy Organizations
Families and children experiencing the effects of CP can seek assistance from these charitable institutions:
- The Lenn Foundation - a 501(c)(3) charity that provides grant opportunities for children with Cerebral Palsy to receive the pediatric intensive therapies they need to thrive.
- Variety The Children’s Charity Detroit - nationwide chapters that help children in need receive food, clothing, therapy bikes, medical equipment, and horseback riding opportunities.
- United Cerebral Palsy - one of the largest health nonprofits in the US today for individuals with cerebral palsy and other disabilities, their families, and their communities.
Blogs & Influencers
Nobody has the perfect solution for CP, but there are those who devote themselves to the idea that practice makes progress that counts. Take advice and inspiration from real people that share their day-to-day experiences and help raise awareness for Cerebral Palsy.
- Briella and Me - Briella & her mom Caroline have shared glimpses of their CP journey for over three years. (Facebook / @briellaandme on Instagram / Linktree)
- Mighty Miss Maya is a tenacious 8-year-old living her life with CP like a total boss. She’s on a mission to help others live mightily. (website: https://mightymissmaya.org / @mightymissmaya on Instagram)
- Sirio Persichetti is a seven-year-old boy diagnosed with spastic tetraplegia, a form of CP that affects the movement of three limbs. His posts (@tetrabondi on Instagram) prove that a disability is no barrier to inspiring others.
The most difficult journeys lead to the best destinations – and a life worth living involves learning, growth, and strength. We hope you find all the support you need!
The above resources can assist you to shed more light on this condition, find community support and stay updated. An investment of attention, time, and action lies in your hands to better deal with Cerebral Palsy based on what you discover.
One common problem your loved ones diagnosed with CP are likely facing is getting proper sleep. Those with disabilities suffer more challenges related to sleep, which affect their daily routines as well as their loved ones and caregivers. Learning about sleep and investing in top-quality sleeping solutions is a great way to make a meaningful difference.
Read our other blogs to get info on how to sleep better:
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